Monday, October 1, 2018

Why I Share

Do you follow people (like me) and wonder...why do they share so much of their lives?  Or think, I'm such a private person, I could not put myself or my family out there like that?  Well, let me tell you sometimes I get anxiety about being the person with a public Instagram account and letting tons of strangers into a large portion of our world, but way more times than that I am reminded of why I do it! The good that comes from our little corner of the internet far outweighs the bad.  So I wanted to share with you a big part of why I share our lives so openly.  

Seven years ago, I had no idea that October was Down syndrome awareness month.  I was oblivious to the fact that there was a whole community of amazing people out there that celebrated such an occasion.  And I really had no clue that the very next month, I would be one of those people.

When Deacon was born with an unexpected diagnosis, I was completely ignorant to what that meant for our lives.  I thought it meant doom and gloom and that our life as we knew it was over.  I immediately started scowling the internet to find out what we were facing.   I discovered a blog and IG account of another family with a daughter who was a little bit older than Deacon and also rocked an extra chromosome.  As I scrolled through pictures and posts, their lives looked pretty "normal".  There was no doom.  No gloom.  In fact, what I noticed most was there was just a bunch of joy that radiated from those images.  That's when the picture I had painted in my head of Down syndrome completely changed, and I knew that we were going to be alright.  More than alright actually.  Life as we knew it was over, but in the best way possible!

I used to feel guilt over my feelings and thoughts during those first few weeks of his life, but I have come to realize that they are completely normal.  You don't know til you know.  And boy do I know now!  That little boy is the biggest ray of sunshine I could have ever imagined, and I cannot help but share such a gift with the world.  

So I share for the Andreas of seven years ago...those who are clueless as to what a blessing that extra chromosome is.  I share for the Momma who is scared to death of the diagnosis she just received.  I share for the people who tell me on a daily basis that they were going through a tough time or having a bad day, but seeing Deacon's video or picture brightened their mood.  I share for the people who don't think my son's life has value.  I dare you to look at my pictures and tell me there's no value there.  I share for the people who feel sorry for people like us.  And I actually feel more sorry for them.  I share because I feel so incredibly blessed to be walking this road.  I will continue to share and shout my guy's worth along with all of those like him, because we truly are the lucky few! And as  Deacon would say, "This is the life!"

Happy Down syndrome awareness month, Friends!